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We are glad to announce you that the continuation of the EUROMAC registry is ensured for the next 3 years through funding obtained at two Spanish national calls.
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In this project Dr Ros Quinlivan at University College London will lead an international clinical trial to test, for the first time, the safety and effectiveness of a drug (Sodium Valproate) for McArdle disease. Work carried out in animal models suggests the drug may have a beneficial effect for people with this condition.
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Dr. Ramon Martí, head of the Laboratory for Mitochondrial Disorders at Barcelona’s Vall D´Hebron Research Institute is the coordinator of the EUROMAC project.
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EUROMAC registry is a secure, anonimised and confidential database designed to contain the medical data related to people with McArdle Disease and related conditions who give their consent to inclusion.
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Check out the views and feelings from patients affected by McArdle’s Diseases and other other forms of rare neuromuscular glycogenosis, where exercise intolerance is the main symptom.
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