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EUROMAC registry continuation

 Updated 22/5/2017


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We are glad to announce you that the continuation of the EUROMAC registry is ensured for the next 3 years through funding obtained at two Spanish national calls (period 2017-2019 - detailed information below).

At this moment, there are 275-registered patients. As registration of patients is a key to any further action to improve their quality of life, and the existence of a registry is an added value to obtain orphan designation of future plausible treatment, we encourage further participation on the registry.

Grant information

Project leader: Dr Tomàs Pinós

Centre: Vall d'Hebron Research Institute

Duration: 3 years, starting 2017

Funding Agency: ISCIII (National Health Plan, Ref: PI16/01492)

 

Project leader: Dr Tomàs Pinós

Centre: Vall d'Hebron Research Institute

Duration: 2 years, starting 2017

Funding Agency: CIBERER (ACCI-2016-03)



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