Technical brochure on EUROMAC
Are you a professional working in the health sector? Do you want to find out more about the registry and the dieases that will be included in our joint effort? Would you like to get in touch with a neurologist or a consultant from our network? Then click on the link here below to download […]
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EUROMAC flyer for patients
We have summarized in a printer-friendly PDF all you need to know about the project, who we are, and that you need to do in order to take part in this registry. Just download the file for free here! EUROMAC patients flyer dec 2013
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14 May 2013- The EUROMAC project kicks off at the European Commission
Dr. Ramon Martí, head of the Laboratory for Mitochondrial Dirorders at Barcelona’s Vall D´Hebron Research Institute, is the coordinator of the newly-awarded European Project EUROMAC, a joint effort of 20 partners spread across 7 European Countries, Turkey and the U.S.. The project aims at bringing forward the knowledge on McArdle Disease, a rare neuromuscular disorder. […]
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BIOCAPS researchers will participate in a European project on neuromuscular McArdle disease
Scientists at the IBIV will help create an international patients register towards an in-depth study of this disorder Researchers in BIOCAPS’ Neurological Sciences and Rare Diseases Area participate in the EUROMAC Project, a joint scientific initiative to progress in knowledge of McArdle disease in which 20 partners from seven countries of the European Union, the […]
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The EUROMAC video is out now!
Check out the views and feelings from patients affected by MCArdle’s Diseases and other forms of rare glycogenoses. In this video, you will also get a glimpse of the main causes for McArdle’s, and you will understand the motivation of the doctors and researchers who joined their efforts to create our European registry of patients […]
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