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EUROMAC Teaching course

We are organizing a EUROMAC TEACHING COURSE - Study Day (Warsaw - Poland). SAVE THE DATE and join us! It will be held the 13th May 2016



EUROMAC TEACHING COURSE: DIAGNOSIS AND MANAGEMENT OF MCARDLE DISEASE AND RARE MUSCLE GLYCOGENOSES - Friday 13th May 2016                        

Contact: sekretarz@ptbioch.edu.pl or enquiry.mcardle@uclh.nhs.uk

Venue:  Centrum Biblioteczno-Informacyjne WUM   63 Żwirki i Wigury  str. 02-091 Warszawa

 

9:00  

Welcome                                                  
 

Professor Anna Kaminska (Warsaw)

   
9:15  The EUROMAC Registry
 

Dr Ramon Martti (Barcelona)

   
9:45 McArdle disease and other rare glycogen storage disorders: clinical phenotype, diagnosis and treatment
  Dr Ros Quinlivan (London)
   
10:30  Screening for Pompe Disease in Poland
  Professor Anna Kostera-Pruszczyk (Warsaw) 
   
11:15 COFFEE
   
11:30 Functional Assessments for McArdle Disease and related disorders
 

Ms Sherryl Chatfield (London)

   
12:00  How to perform the Forearm Exercise Test
 

Ms Suzanne Booth (London)

   
12:15 Quality of Life and Pain Management for McArdle disease
 

Dr Jatin Pattni (London)

   
13:00 LUNCH
   
13:30  Exercise (Aerobic and anaerobic!) as therapy for McArdle Disease
 

Dr Richard Godfrey (London)

   
14:00 Dietary intervention in McArdle Disease
 

Ms Rachel Carruthers(London)

   
14:30 What Can Patient Organisations do to Help?
 

Mr Andrew Wakelin (AGSDUK)

   
15:15

TEA

   
15:30  Animal models for McArdle disease
  Dr Tomas Pinos (Barcelona)
   
16:00 Clinical trials for McArdle Disease
 

Dr Renata Scalco (London)

   
16:30

CLOSE    

 

 


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