EUROMAC Teaching course
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06/03/2016
We are organizing a EUROMAC TEACHING COURSE - Study Day (Warsaw - Poland). SAVE THE DATE and join us! It will be held the 13th May 2016
EUROMAC TEACHING COURSE: DIAGNOSIS AND MANAGEMENT OF MCARDLE DISEASE AND RARE MUSCLE GLYCOGENOSES - Friday 13th May 2016
Contact: sekretarz@ptbioch.edu.pl or enquiry.mcardle@uclh.nhs.uk
Venue: Centrum Biblioteczno-Informacyjne WUM 63 Żwirki i Wigury str. 02-091 Warszawa
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9:00 |
Welcome |
|
Professor Anna Kaminska (Warsaw) |
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| 9:15 | The EUROMAC Registry |
|
Dr Ramon Martti (Barcelona) |
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| 9:45 | McArdle disease and other rare glycogen storage disorders: clinical phenotype, diagnosis and treatment |
| Dr Ros Quinlivan (London) | |
| 10:30 | Screening for Pompe Disease in Poland |
| Professor Anna Kostera-Pruszczyk (Warsaw) | |
| 11:15 | COFFEE |
| 11:30 | Functional Assessments for McArdle Disease and related disorders |
|
Ms Sherryl Chatfield (London) |
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| 12:00 | How to perform the Forearm Exercise Test |
|
Ms Suzanne Booth (London) |
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| 12:15 | Quality of Life and Pain Management for McArdle disease |
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Dr Jatin Pattni (London) |
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| 13:00 | LUNCH |
| 13:30 | Exercise (Aerobic and anaerobic!) as therapy for McArdle Disease |
|
Dr Richard Godfrey (London) |
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| 14:00 | Dietary intervention in McArdle Disease |
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Ms Rachel Carruthers(London) |
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| 14:30 | What Can Patient Organisations do to Help? |
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Mr Andrew Wakelin (AGSDUK) |
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| 15:15 |
TEA |
| 15:30 | Animal models for McArdle disease |
| Dr Tomas Pinos (Barcelona) | |
| 16:00 | Clinical trials for McArdle Disease |
|
Dr Renata Scalco (London) |
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| 16:30 |
CLOSE |
