12 Feb - First Annual Pompe Day
Pompe Disease robs us of our physical strength and abilities. But despite our physical weaknesses, I believe that we have a great strength as a Community. As a united community of patients, family, friends, physicians, scientists, and industry we have an undeniable strength.
 |
Pompe Disease robs us of our physical strength and abilities. But despite our physical weaknesses, I believe that we have a great strength as a Community. As a united community of patients, family, friends, physicians, scientists, and industry we have an undeniable strength. It is as a united community (the Pompe Model) that we have made great strides in learning more about Pompe Disease and in working towards treatments and disease management. It is as a united community that we support each other when the daily struggles of living with Pompe become too much. Nothing that has been accomplished would have been possible without everyone working together. |
