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The first two EUROMAC registry articles are now available

The first two EUROMAC registry papers have been recently published (November 2020) in the Orphanet Journal of Rare Diseases.



The first two EUROMAC registry papers have been recently published (November 2020) in the Orphanet Journal of Rare Diseases. 

 

The first paper describes the creation and implementation of the EUROMAC registry:

 

While the second paper reports the data collected from approximately 300 patients:

 


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EUROMAC
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08700 Igualada (Barcelona)+34 934 894 054info@euromacregistry.eu


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