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EUROMAC registry continuation

We are glad to announce you that the continuation of the EUROMAC registry is ensured for the next 3 years through funding obtained at two Spanish national calls



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We are glad to announce you that the continuation of the EUROMAC registry is ensured for the next 3 years through funding obtained at two Spanish national calls (period 2017-2019 - detailed information below).

At this moment, there are 275-registered patients. As registration of patients is a key to any further action to improve their quality of life, and the existence of a registry is an added value to obtain orphan designation of future plausible treatment, we encourage further participation on the registry.

Grant information

  • Project leader: Dr Tomàs Pinós
  • Centre: Vall d'Hebron Research Institute
  • Duration: 3 years, starting 2017
  • Funding Agency: ISCIII (National Health Plan, Ref: PI16/01492)
  • Project leader: Dr Tomàs Pinós
  • Centre: Vall d'Hebron Research Institute
  • Duration: 2 years, starting 2017
  • Funding Agency: CIBERER (ACCI-2016-03)

 

 


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EUROMAC
Avda. Barcelona nº 174 1º 2ª
08700 Igualada (Barcelona)+34 934 894 054info@euromacregistry.eu


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