EUROMAC registry continuation
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21/06/2021
We are glad to announce you that the continuation of the EUROMAC registry is ensured for the next 3 years through funding obtained at two Spanish national calls
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We are glad to announce you that the continuation of the EUROMAC registry is ensured for the next 3 years through funding obtained at two Spanish national calls (period 2017-2019 - detailed information below). At this moment, there are 275-registered patients. As registration of patients is a key to any further action to improve their quality of life, and the existence of a registry is an added value to obtain orphan designation of future plausible treatment, we encourage further participation on the registry. Grant information
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